Meckel-Gruber Syndrome

[ Parent to Parent Forum ]

Posted by Carie Schneider on September 18, 2003 at 20:41:53:

If anyone has a living child with Meckel-Gruber Syndrome or a specialist that is familier with this syndrome please contact us at the e-mail address listed. We have a 2 year old daughter diagnosed with this. Not a lot of information on this syndrome. Please help.

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