Posted by Kia on April 30, 2004 at 21:41:42:
In Reply to: Meckel-Gruber Syndrome posted by Carie Schneider on September 18, 2003 at 20:41:53:
I would like to speak to you. At this time the doctors are assessing my infant to determine whether she has Meckel-Gruber. But I do understand your frustration, there isn't any information on Meckel-Gruber that I've found. Please e-mail!